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**sniff for me, smile for you**

Sun Dec 27, 2009, 8:39 PM
*sigh*
My camera was stolen days before Christmas...
You all have officially been spared of my photos and video blogs. I'm telling you, it was a conspiracy based on empathy for you all. The photo I put up today was my phone camera. It's working for memory making, at least. Not the same, honestly, sniff...

Truly, though, I cried. I miss it dearly. :cry:

And painting, well it's in the works... but the sternum (front center of the rib cage) is still very tender from having been sawed through, so it will take a little bit. Moving normal is difficult, especially when I don't move normally anyway. LOL I WILL get on it soon.

Hope the holidays were great- hope you enjoyed your family. I do not live by mine so I will live vicariously through you guys.

All is well here- enjoying texting with my nieces and nephew... it's been awesome being able to talk to them whenever I wanna. HEEE HEEEEEEEEE I have my niece convinced I am bald with just a really good combover and that lingo for "looking for gold" in Florida is picking your nose...with a hanger... ROFL
That's good times right there. LOL

HUGS- SmileS!

  • Mood: Joy
  • Listening to: chorea- I think I got yer numer- chorea...
  • Watching: it all happen in front of my eyes.
  • Playing: woot woot
  • Eating: it up!
  • Drinking: it all in.

25 lbs in Water Weight, Holidays, & Recovering

Wed Dec 23, 2009, 6:24 AM
Thanks everyone for all the support you offer me. I am feeling much better- still sore but I guess that's to be expected only a week and a half after having your chest ripped open.

*sigh* wish I coulda had pics of that... *sigh*

LOL

Highlights of the last few weeks:
1. Lortab (Vicadin) ROFL Thank you to whatever God that made the man that made pain medicine take the place of whiskey. ROFL

2. You can still have sex with wires in your chest and stitches across it... you just have to roll yourself up like a mummy and screw like bunnies. LOL Make it quick... you don't have much time before it feels like that scene from Aliens will happen to you. Which one, you ask? Does it matter... NONE of them look fun LOL

3. My daughter makes shopping easy...I just shop for a boy with one eye and a crazy ninja addiction, and I am set! LOL

4. Knitting = free hats to loved ones. You're thinking from the "loved ones" point of view and going, 'OH NO'! aren't you? That's fine. But my hats are cool- when I choose them to be. MAH HAHAHAHHA.... (evil laugh)... and now you're wondering what the highlight of all this is. Torturing my husband with yarn shopping...
Sorry baby, ya know, bed rest, recovery and all that jazz....
"What's worsted?" He asks.
"Dunno." I answer... and yet, another evil laugh. LOL

5. I am alive after a relatively serious surgery. Yeah. It's true. And all I can say to that is thank B-Jeesus the doc did NOT sneeze while cutting the mass out from above my heart. LOL You rock, doc! :headbang:


And sadly, now, the LOWLIGHTS:

1. My husband and daughter decided to willingly partake in the having of a cold. What? You ask. Willingly, really? Yes. Yes, in fact, I am sure they found some sick person out there, got really close to their faces and inhaled deeply as the sick individual spread their germs out into the world.
See, after surgery, for as long as I can, I am to try to avoid any germs or infection as I am at risk, and my immune system is all jacked up now because the surgery. My oh so loving daughter, and obedient husband are now dripping from their noses, chasing me everywhere for hugs and cuddles, knowing I cannot run. (literally, i cannot- remember I have chorea and dystonia and I am NOT a Washington Redskins' cheerleader) It's just cruel... these two. LOL

2. It occurs to me how easy it is to shop for my daughter by pretending she is a one eyed ninja.... LOL Some have daughters. I have a fucked up Game Character for a kid. LOL ROFL (NUM YEW VAAN!!!)

3. My scar does NOT have a zipper tattoo to cover it yet. So right now, I have to draw it, and sadly, I'm dumb... the zipper is now upside down. LOL

4. I shake my head at Christmas trees. My mother, on the other hand does not. I do not have a Christmas tree. My mom, in the loving way only mothers can do (and I know, because I AM one), bought me a little 7 inch wire tree. (yes, I measured it.... 'Bren, come here real quick will ya... LOL!!")
Anyway, so she got me a little wire tree as there is NOTHING in my house that would make you or anyone else believe that the holiday season is here. Not one thing. Wait, I guess technically this is a highlight... LOL... anyway, moving on... SO I told my daughter (Vaan), "Hey sucks to be you for Christmas this year!" Grinning.
"Why?" She asked.
"Cuz all we got here is this 7 inch wire tree, and no gifts will fit under that. I'm sure you understand. " LMFAO

5. Watching the movie 'UP'-it IS a good movie...BUT I lost 24 pounds in water weight, my husband's eyes are now swollen up like a dead fish and my daughter hid under her Snuggie while enjoying a good "MUAH HA HA HA HA" evil laugh at our expense. Nothing like good quality time this holiday season. ROFL-

6. No money to buy anyone presents. *sniff* I'm only getting 40% of my pay right now, because I am on Long Term Disability, and things have been entirely too tight. Hell, this may be part highlight too. I don't have to go out in that madness we see when the season arrives. Ya know the ones... those crazy lunatics that beat each other down for the last "Tickle Me Elmo" dolls or whatever is cool right now...(probably the DS's). Besides, last time I did that, I was in cuffs. ROFL J/K
Anyway, yeah, no money to buy my husband the tools he wants that he won't use... (ROFL!), and no money to buy my Mom the sweater she will take back... (LMAO love you mom)....No money to buy my nieces and nephews clothes they won't fit... LOL.... and no money to buy myself something because my husband won't. LOL
BUT- as with most my other lowlights, there is a highlight to this.
I have MADE gifts for people. *EVIL LAUGH- MAH AHHAHAHAHAHHA* Yep- and ya know what happens to those. Ya get them, ya do the kind sideways smile to act like the sentiment means EVERYTHING, when in fact, you are thinking, "Exactly how often do I have to wear this to avoid hurting their feelings." or... "I wonder if hanging this in the hallway when they come over will suffice and make them believe i like this?" ROFL

See, I did a portrait of Bren (my hsband) for his mother. She is ALL about her perfect little baby boy...
well most of you artists out there can relate to me when I say it isn't as easy doing a portrait of someone you love or even jst know for that matter.
SO- she's getting a portrait of Bren with a big hed, little eyes and an out of porportioned face.
ENJOY!
ROFL

SO there ya go!
I hope this season finds you all well, happy, laughing, and truly enjoying what SHOULD be most important about this season. Spiked Egg nogg. ROFL Just kidding- each other. You can't take gifts with you when you die, but you can take memories...
Make some good ones to finish out this year! LOVE YA ALL!

~Shay~

  • Mood: Joy
  • Listening to: chorea- I think I got yer numer- chorea...
  • Watching: it all happen in front of my eyes.
  • Playing: woot woot
  • Eating: it up!
  • Drinking: it all in.

Some of My New Video Blogs

Journal Entry: Sat Dec 19, 2009, 6:33 AM
Shay's Place


1. After the surgery... [link]

2. Shay's Dating Advice... [link]

3. Random thoughts about Twinkies, Naked Babies and Drugs: [link]

4. Random Thoughts- Payments In Gum & Bitch Slaps: [link]

Hope you enjoy!

  • Mood: Joy
  • Listening to: chorea- I think I got yer numer- chorea...
  • Reading: The Shack.
  • Watching: it all happen in front of my eyes
  • Playing: woot woot
  • Drinking: it all in.

For Those of You Who Don't Know Who I Am

Journal Entry: Sat Dec 5, 2009, 5:07 AM
Shay's Place


[link]

  • Mood: Joy
  • Listening to: chorea- I think I got yer numer- chorea...
  • Reading: The Shack.
  • Watching: it all happen in front of my eyes
  • Playing: woot woot
  • Drinking: it all in.

No Smile Today

Journal Entry: Tue Nov 24, 2009, 7:29 AM
Shay's Place


Sorry I haven't blogged much lately other than to vent incoherently through poems or whatnot. Sometimes there are things I do not or cannot talk about bt still need to get out, and that's the only means I've got right now.

Facing the surgery has, of course, been difficult. Who wants to know someone will use an oscillating saw to cut open you rib cage? LOL Besides that, though, the movements continue to progress, which worries me. To some, the movements look better, because they aren't as quick and regular. You would think this would be a good thing, but it isn't. They hurt like hell now, have made walking even more difficult than it was before. Sometimes I miss just having chorea, rather than the dysonia taking precedence in my body. It's a mean creature, sometimes. Someone asked me once, does it hurt? I said, "Does it look like it hurts?" Ah... there's your sign. Of course it hurts. It didn't always hurt though. Chorea was more kind to me when it was alone... just making things awkward and difficult... like cutting things. LOL
(although truly an appealing "excuse" for criminal behavior, I continue to "behave" unlike a criminal.LOL)
The thing is, I don't want to be like this forever, anymore than anyone else who has it or someone watching someone they love with it. I used to say I wish I had just been born with it so I wouldn't have known anything different. But I'm learning that isn't the case... anyone with this is aware that there is something different than they way they live, but their misfortune is having NEVER known it. I try to be grateful for the bike rides I've known, the walks I've taken, the swimming, running, skating and wrestling...
But I miss them.
I miss them terribly.
And I am scared this will be me forever and I'll never see those things again. I'm stuck in a spot where it's almost like someone I love is in a coma and we are waiting to see if they will wake up- and be themselves again. And yeah, I do happen to know what that's like... and it's similar.
It really is.
Only it's me... the old me that could, would and did se their legs often, enjoy activity... it's me and I am scared I won't get me back!
See, Krystal, we all feel what you feel for your daughter, some of us have it, and those of us, like everyone else in the world, have a mother, father, a Kenny, a sister, a daughter, that want that for us too. This isn't just me grieving... it is my family, grieving it FOR me, WITH me...

This disease has robbed me of self-esteem and confidence. Blind... it came into my home, my life, and snuffed it right from under my nose. I would have sold my body before ever letting it be stolen. LOL Seriously, though...the adaptation doesn't come as easily some would think. Many people email or tell me, "My gawd, you're so strong..." Or "Your smile really helps people feel inspired."
What the hell else am I supposed to do? If I cry, it's likely I won't stop. And I don't wanna dry up into a lil Shaysin. LOL (Get it, like a raisin) ROFL (insert cheesey drum roll)
I'm intimidated by this. I am. It's true- and it isn't easy to intimidate me. In fact, it's not likely for me to get intimidated by much, but this has me good.
I miss work. I miss my independence... I miss shaking my ass in front of my husband to flirt... I miss feeling like I am enough for him. Of course, his wandering eyes don't help... not right now. Bt beyond that, I miss me. I miss cooking, without worry that I'll drop hot oil on myself, or have a movement that will lay my head into a Wok full of boiling rice. Laugh it up- I did when it happened... because if I didn't, I would have chucked that wok of rice right the hell across the room.
Those of you who struggle with this, that only see the smiles, and those of you who don't who only see MY smiles IN this, know this, don't let it fool you. It's scary, it's devastating, it's frustrating and it's sad. It is. I do get days like today, where I'm like, "SERIOUSLY, STOP FUGGING MOVING!!!!" Yes, I do. I get really bad days where I hate this thing. And yeah, I have good days too- where I remind myself that I can let the pain be empowered or I can BE empowered by the pain. It all depends on the day, same as anyone else.
The only difference is, I don't get to wake up normal tomorrow, like everyone else. And sometimes, just sometimes, that TRULY sucks ass.

Krystal, if you read this, I'm sorry if it bummed you out. I don't want you to think I'm trying to bring anyone down, but the reality is something you are aware of. And sometimes, that reality sucks. The question for you and your daughter, or me and my family, is can we suck it up enough so we smile more than its screwing with our joy? One day yes, one day no... all days are perfectly ok to go through just as we need. And today, I'm resenting it. Tomorrow, maybe I'll smile, but today, I hate it.
If I cannot find a way to kick this things ass, so help me God, I WILL find a way to make it sorry it met me!

[link]

  • Mood: Joy
  • Listening to: chorea- I think I got yer numer- chorea...
  • Reading: The Shack.
  • Watching: it all happen in front of my eyes
  • Playing: woot woot
  • Drinking: it all in.

Shoutbox

~barnespirates:iconbarnespirates:
Love ya Shay!!!!
Fri Jun 19, 2009, 12:42 PM
=guardianodin:iconguardianodin:
Woot! to Shay for the awesomest blogs and journals =)
Fri Jun 19, 2009, 8:04 AM
~rossbilly:iconrossbilly:
thanks for the feature - a total surprise and, after a long hiatus on DA, this has to be my best Christmas gift :)
Sun Dec 28, 2008, 10:29 PM
*cdmalcolm:iconcdmalcolm:
Thanks for the feature, Shay. Love Ya.... in December. Happy Christmas and Merry New Year
Tue Dec 16, 2008, 12:13 PM
=Lizkiz:iconLizkiz:
Hey! Thanks for the feature! =)
Thu Dec 11, 2008, 7:40 PM
=shaynoggle:iconshaynoggle:
Love ya CD!
Tue Oct 21, 2008, 6:03 AM
~wickedlizard:iconwickedlizard:
hey sweetums! how are you????
Tue Oct 7, 2008, 6:03 AM
*DarthSammo:iconDarthSammo:
Thanks for the comments and praise. You are the real hero whether you realize it or not.
Fri Oct 3, 2008, 11:08 AM
=shaynoggle:iconshaynoggle:
:hug: to all my friends out there who get me motivated and inspired!
Fri Oct 3, 2008, 10:33 AM
~Talk3talk4:iconTalk3talk4:
TT love SHAY
Tue Sep 16, 2008, 8:51 AM
~sefkobayashi:iconsefkobayashi:
Thank you for the feature as well! You totally made my day!
Mon Sep 1, 2008, 1:52 PM
*cdmalcolm:iconcdmalcolm:
Thanks for the feature, Shay. Love Ya....
Mon Aug 11, 2008, 1:53 PM

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What about Autumn most appeals to you? 

44%
16 deviants said The colors!
19%
7 deviants said Halloween- the freaks come out at night!
14%
5 deviants said The smells!
11%
4 deviants said The true vibrance in living.
3%
1 deviant said The clothes- I totally rock the scarves!
3%
1 deviant said The clothes- I can hide the mess, finally!
3%
1 deviant said The foods- yum yum to the tum.
3%
1 deviant said The evidence of the dying.

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